A Day in the Lyfe As A Disabled Woman.....

Introduction 

Well, hello to the first blog of my life as a disabled woman. I would like to introduce myself to you on this blog and explain to you how I am disabled and exactly what I have. I can understand some of you may look at my pictures and my blog entries and wonder what may be wrong with me because I have been told that looking at me some can't tell that I am disabled, I consider myself blessed on that part....

First of all my name is Tysie and its pronounced TySee. I am a 40-year-old woman who lives in Louisiana and I am the mother of a 22-year-old son and a 4-year-old puppy mixed with Pomeranian and a chihuahua his name is Huggs. He is my service dog due to my anxiety and depression. He does help a lot even though when its time to go to bed he doesn't like me all that much...

I live in a gated community and I have to say I love it.... 

At birth, things weren't right with me. My mother didn't notice anything until I started to grow and my body started to change and that is when I was first diagnosed with an autoimmune disease entitled #MyastheniaGravis. This is an illness that affects the muscles from physical to ocular meaning eyes. My mother started to notice as I begin to grow as a child that my upper eyelids were very low and they wouldn't open as they should. She took me to several different doctors and I was diagnosed with what we with Myasthenia Gravis called MG for short. At the time of being diagnosed I was only showing symptoms in my upper eyelids and as I got older and went through more test and had more and more blood drawn and started to have issues with my legs giving out on me in the middle of walking down the hall at school they diagnosed me with not only Ocular MG but I also had Generalized MG as well which basically means that I have it in my eyes and in my entire body as well.

https://articles.mercola.com/myasthenia-gravis/types.aspx

Life for me at that point took a turn for the worse. Especially after it was time for me to start school. From Upper Elementary on through to Junior high school, I was teased, tormented and bullied in every way people knew how to from pushing me down to calling me blind. All the way to knocking my books out of my hands and throwing spitballs at me. Luckily for me in my upper elementary years of school, I had cousins and my cousins had friends and they all took up for me and didn't let anyone mess with me as best as they can. Junior high school was bad but not as bad because I kind of stayed my distance from those who I knew seemed to have an issue with me for whatever reason. Mind you through all of this I have Asthma as well...

https://www.webmd.com/asthma/default.htm

Then later on in life once I hit 17 years of age and was in high school. I met and fell for the finest boy on the football team and in the school as far as I was concerned. He knew I liked him and I am not sure if he liked me or if he just wanted sex... At least I didn't know that at that time I quickly found out after I gave in to him and we had sex and three months later I found out I was pregnant. 

So my life went from single and free to RESPONSIBILITY... He, of course, didn't think I was being honest but hey its out and my son is 22 and looks just like him so all is well in the world with that but I said that to say this... During my pregnancy, I found out about another illness that decided to POP up when I was about 5 to 6 months pregnant and that lovely illness was HyperThyroid Disease.

https://www.webmd.com/a-to-z-guides/hyperthyroidism-directory

Hyperthyroid is an illness that is caused by the thyroid gland in your neck (throat) not producing or even producing too many hormones into one's system. It just depends on which one you have. Now when I was pregnant I had Hyperthyroidism and it just basically (for me) made me super hyper and I had more energy than I knew what to do with. I walked for miles and miles while I was pregnant and I just was never tired. After I had my son I still walked. They monitored my thyroid while I was pregnant to make sure it didn't get too out of hand and well it didn't as far as they were telling me. Then I gave birth as a high-risk pregnancy due to my Myasthenia Gravis. Because people with MG is really not supposed to have children because of the strain it can put on your muscles and being that they are already weakened by the illness more strain can cause more issues. 

Once I had my son they continued to monitor my thyroid and when he was around the age of 2 years old and I was 19 I went through something called RadioActive Iodine treatment. Which is basically they make you take this pill that has a RadioActive substance in it that makes the thyroid gland in your neck SHRINK... A lot of people are confused on taking this pill for this treatment for some doctors will tell their patients that RAI will kill the thyroid and that is not true. All it does is shink it and causes it to not produce as much hormone within one's body. However, once they shrunk it they did indeed put me on some medication to help supplement the hormones that I would need to have in my body because one some people don't know or realize is that the Thyroid Gland is a major part of the body. It is the gland that does the most in the body for the brain... It helps to keep you SANE, it helps to control your Central Nervous System. If this isn't working properly it can indeed cause you to have or become bipolar, get depression, anxiety, panic attacks, or even schizophrenia.  Me myself I already have schizophrenia in my family and I have depression as though thousands of people in the world do as well and I have anxiety as well which is why I have my dog...

My life went on and I was raising my son. I moved out of my mom's place at the age of 20. I turned 21 in my first apartment. Once I did the RAI treatment I then went from being HYPERthyroid to being HYPOthyroid which means that I begin to be tired all of the time and all I really wanted to do was sleep. So my doctors had to adjust my meds and keep adjusting them until they got them to a dose that was good for me. I am now still HYPOthyroid until this day and I am at the age of 40 as I stated earlier...

Through this process of being HYPOthyroid, I developed Graves Disease which caused issues with my eyes that I, of course, had surgery for. I had to have a surgery called Orbital Decompression. It's basically the removal of tissue and bone from the eye socket to allow the eyeball that has been pushed forward due to the swelling of the muscles to have a place to settle... I had to stop putting processed chemicals in my hair for it was falling out. I had to start taking iron pills for I became anemic. I also started taking B12 shots and daily vitamins to give me energy to actually want to get out of bed at a decent time to enjoy some of the day. Because it was at a time in my life where I would sleep all day. This meant I wasn't getting in food in me and I wasn't getting any fresh air no water, no nutrients NOTHING... for all I wanted to do was sleep. I was doing well on the mental front until I met my now ex-boyfriend and he decided that he wanted to be a Facebook Whore. We dated for 2 years before I realized he wasn't for me and I also found out that he was on drugs (crack to be exact) so he had to go... But while dating him I went through so much stress and depression trying to love a man who didn't even love himself. It was then that I started to see a therapist at the local mental health clinic in my town and started taking depression meds. This is something I should have been done from the age of 15 from when I was raped at age 14 but I didn't I just kept my mouth shut and dealt with it by pushing it in my mind safe and hid it under lock and key...

Now I am taking these meds and standing up for myself more now because there is only so much I will tolerate within my life and space. I am now dating a guy who has his own share of issues of which I knew nothing of when we met. Now it seems that he has developed a fear of me leaving him and it seems that his entire life is surrounded by this fear and its a huge issue for us and I keep telling him if he doesn't get over this fear it will come true because I am not gonna be smothered by no man cause he can't handle life and what happens in it. If he just does what he is supposed to do as my man rather he lives with me or not then he and I are good... He knows the things I won't tolerate... LIeing, Ignoring Me, and of course Being smothered.... I am not a very emotional person anymore thanks to the wonderful illness of Thyroid Disease. This illness has a tendency to take your sex drive away and your ability to feel emotions along with all the jackasses I have dated over the years. 

When it comes to relationships for me and love it is beginning to seem very OVER-RATED in a lot of ways. Its as if people in the 21st century have no idea what love is or what it means to even be in a REAL, COMMITTED AND SERIOUS MONOGAMOUS RELATIONSHIP. 

But anyway that is my life in a nutshell... I will be returning to write more another blogs on a daily basis (at least I will try to) for "My Lyfe of a Disabled Woman"