If you have IBD or any invisible illness for that matter, you will understand what it’s like to have to deal with people who either have no understanding of your illness or people who are just plain ignorant.
When I was first diagnosed and for a few years after, I would fight back against the comments, defend myself as to why I was so tired, why I had lost weight, why you are not the same if you have IBS. Now, I just grit my teeth and bare it. It is so unbelievably exhausting having to constantly say the same thing over and over again. At first though, things like these comments really messed with my head. I became so anxious, I began having panic attacks. I remember one time, I was out shopping on my own at the local craft market. I had just been chatting to a girl I used to work with who was running her stall. Just as I walked away, my heart began to race. Faster and faster. I quickly found it hard to breath and that’s when my vision started to blur and get darker. Luckily, the girl I had just been chatting with saw I was about to hit the deck and sat me down. I didn’t know what the hell was going on, so I called my IBD nurse. “Sounds like you’ve had a panic attack.”

These are just some of the comments I’ve had to listen to.

“I wish I had what you’ve got to be that skinny.”

“Should you be eating that if you have a bad stomach?”

“You look fine.”

“You don’t look ill.”

“I know exactly how you feel.”

“Wish I could eat what I want and stay skinny.”

“You should go to bed earlier if you’re so tired all the time.”

“Young girl like you shouldn’t need to use the lift.”

“You look awful.”

“I’m the same, I have IBS.”

“You should exercise more.”

“You should try eating more fruit and veg.”

“Be more positive.”

“Why are you using this toilet, you aren’t disabled.”



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Published by Elle Quinn